A few years ago, my husband Shawn and I found out that he has a rare genetic disorder (Alpha-1 Antitrypsin Deficiency) that causes progressive degeneration of the lung tissues and eventually emphysema. Not every person with Alpha-1 will develop symptoms, but most people start to show signs between the ages of 20 and 50. (Shawn is 36 now.)
When we first learned of this, we were getting ready to be married and begin our life together. It was hard news; we had hoped for a long and happy life full of riding bikes, hiking, dancing, and exploring the world. And we still are! We are doing everything we can to keep Shawn healthy and active so that he will be among those who never develop symptoms and defy the odds. But we also respect those odds, and so we want to support the scientists who are doing the research that could lead to treatments or a cure.
To that end, we are riding in this year's Reach the Beach fundraiser for the American Lung Association. If you're able, please join us in our efforts to make a difference by making a personal or corporate tax-deductible donation. Or if you ride, come join us! We'd be happy for friends on the road ahead.
Thank you in advance for your support!