Approximately 3 years ago, I found out I have a rare genetic lung disorder called Alpha-1 Antitrypsin Deficiency. Most human bodies make a useful protein that helps their lungs regenerate and stay healthy; mine does not. While it's possible that I may never exhibit symptoms, people with Alpha-1 usually develop the first signs and symptoms of lung disease between ages 20 and 50 and often develop emphysema. I'm 36.
As a sci-fi futurist engineer, I want science to bail me out and give me some robot parts. Come on SCIENCE!! But until my cybernetic implants are invented, I will need to stay healthy and active.
After thinking about a few things that I love (lung disease awareness, riding bikes), I decided to jump in and join the 'Reach the Beach' century bike ride from Portland to Pacific City. Reach the Beach is a one-day fundraiser to support the scientific research, education, and advocacy programs of the American Lung Association.
If you would like to show your support for me or anyone you know with some lung disease, please donate using the link below. All proceeds go directly to the American Lung Association and may help me get that set of robot lungs some day. Or if you are interested in a fun day of riding to the coast, please join my team! The journey ahead is uncertain and I would be happy to have friends along for the ride.
Thank you in advance for your support!