On September 28th, I'll be participating in my 2nd Reach the Beach ride for Heidi and the other 35 million people suffering from lung diseases!! I'd love your support as I bike 100 miles from Lacey to Westport along with many others, raising money for the American Lung Association of Washington. Your donation would help fund research, and provide education and advocacy efforts, many of which Heidi can benefit from.
Nobody should have to face this journey alone; it took Heidi a long time to reach out and be a part of the ALAW community for support and it's still hard for her to do as she never wants to burden anyone. I want to show her that we're all here for her! So many people ask how they can help and although we can't breathe for Heidi ;), we can show her our support and love by either donating to this cause or simply supporting and following us during this 'Reach the Beach' adventure by sending well wishes and love!
Last year was such an absolutely amazing experience and Heidi was overwhelmed by all of the love and support, she was in tears pretty much the entire day ~ not a surprise! ;) The American Lung Association is an incredible family to be a part of; even the kids felt all the love as they celebrated and cheered alongside staff and event volunteers throughout the ride and at the finish line, getting so much love and praise (and even metals!) for their amazing efforts in raising money and supporting thier parents and the ALA! We've made many great friends through this ride and being a part of the ALA and we couldn't be happier to show our support, again, for lung disease research and support!
Many of you know our story, but for those of you that don’t...here is why I ride...
Two summers ago, after many years of respiritory infections (I believe 18 was the final count), pnemonia countless times, multiple different types of inhalers, being prescribed prednisone and antibiotics on a routine basis, so many sleepless nights spent with her nebulizer, hospitilizations and testing, etc...Heidi was ultimately diagnosed with bronchiectasis (a progressive rare lung disease) and uncontrolled severe asthma. This was a complete shock to us and changed our life in an instant. However, we were relieved to finally have answeres and were anxious to start her on a treatment plan that would hopefully allow her to enjoy our busy life with as little health interuptions as possible! Heidi's instincs were right that something serious was wrong, and our belief that all of this was a result of her and Elsa having the H1N1 Swine Flu in 2009, was validated. It took doctors 8 years of struggling to figure out what was going on and diagnose her. Long term affects of the Swine Flu and so many other issues with various lung diseases aren't widely known yet...let's work toward raising money for more research and support of lung health and disease! Neither of Heidi's diseases have a cure, but that doesn't mean research can't change that!
She found an amazing pulmonologist and care team who has her on a great plan with good meds and keeps her in check constantly monitoring her symptoms and issues, but she still has daily struggles and it's not as easy as she always makes it look. Keeping up with the kids and being the active person she is takes alot out of her. Although her regimen keeps her stable, it doesn't take much for her body to spin out of control. We've had many scary moments since the last Reach the Beach including an allergic reaction to an antibiotic causing cardiac arrest, a terrible infection that went undiagnosed for months causing crazy scary symptoms throughout her entire body (the kids watched her being taken away via ambulance after already spending the day before in the ER), and so many sleepless nights not being able to breathe and days spent resting (hard for her!) after catching a common cold as it always turns into something worse for her. Despite all of this, she's remained positive and keeps living life to the fullest and doesn't want lung disease to define her, but it's still hard for her to accept and get used to. Anyone who knows her knows that nothing will slow her down, but she still hates reaching out for support. Her doctors have new plans in place now and we have each other and that's all we can ask for as we do our best to get used to our 'new normal'. This is why I ride 100 miles ~ to show her how much I love her and that I will not stop advocating for her!
It was shortly after her diagnosis, we heard about this awesome cycling event to help support Lung Disease and ride for a cure and we knew it was something I had to do!! Everyone who knows me knows I love biking and I'm dedicated to my daily commuting downtown! If I can ride to work all year long with crazy drivers and even brave the dark winters and snow....I can ride 100 miles for Heidi! She (and the kids and the in-laws) will be cheering me on throughout the journey and meeting me at the beach and we can't wait! If anyone wants to join me and ride, there are 4 options ~ 100 miles, 80 miles, 44 miles and 25 miles. Heidi was hoping to join in the last 25 miles but unfortunately won't be able to do it this year...but that won't stop her from meeting me along the way and screaming/crying her heart out at the end like last year! Let me know if you're interested or even just want to join me for a long trainging ride in the next month or so, I'd love to share this journey!
Thank you for taking the time to read our story and for your support and love! Terry, Heidi, Elsa and Isak
Let's make sure everyone can benefit from healthy air and lungs
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Together we can fight lung disease successfully!